IPSWICH, Mass. (WHDH) – A community came together to support a little girl battling a rare genetic disease. The True North Ale Company hosted a fundraiser event Saturday for 12-year-old Talia Duff.
Talia has a rare disease called Charcot Marie Tooth Type 4J, or CMT4J. The disease is similar to ALS; Talia requires use of a wheelchair and requires daily therapy to stabilize her breathing.
The foundation has raised more than $942,000, as of Sunday afternoon, to help find a cure.
Ipswich Middle School students created a video about her condition, which went viral earlier in the month. Their goal is to reach $1 million by New Year’s Eve.
The foundation has reached nearly 94 percent of their goal, but there is still time to donate. To help Talia reach her goal, visit CureCMT4J.org.
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