IPSWICH, Mass. (WHDH) — A hair salon in Ipswich held a fundraiser Thursday to help a middle-schooler with a rare disease.
At Hair Crafters, people came in for a haircut for $20, with all the proceeds going to Talia and her family. Last month, the salon raised $600 for Talia by putting streaks of her favorite color, purple, in clients’ hair.
RELATED: Ipswich students raise $125,000 to fund gene therapy for sick classmate
Talia started losing movement in her arms and legs when she was 3 years old. She was then diagnosed with Charcot Marie Tooth Type 4J, or CMT4J. The potentially-deadly neurological disease is similar to ALS and Talia uses a wheelchair to get around.
Talia needs $1 million to fund gene therapy that could possibly lead to a cure. Her classmates have helped by releasing a video online and selling jars of cookie mix and the rest of the community is pitching in as well. Talia and her family have about $250,000 left, which they hope to raise by the end of the year.
To donate to Talia’s gene therapy, click here.
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